North Texas ALS advocates meet with Congress

Mother's Day weekend took on a new meaning for a group of North Texas ALS Advocates this year when they traveled to Washington, DC to attend the National ALS Association Advocacy Day and Public Policy Conference.  They joined more than 850 other ALS Advocates from across the nation, decending on Capitol Hill to meet with members of Congress to advocate for the public policy priorities of The ALS Association.

Two local families joined North Texas Chapter Director of Patient Services, Renee Lowery, in Washington DC and met with 6 members of the North Texas House delegation and both Texas Senators.  Terry and Lisa McCann, from Fairview, and Loree Long of Weatherford, helped to educate members of Congress and their staffs about living with ALS and on the importance of several key pieces of legislation affecting people with ALS.  The advocates discussed the need for continued funding of the Peer Reivewed ALS Research Program through the Department of Defense and funding of the ALS Registry Act pilot program.  They also advocated for H.R. 5454- a bill that would name ALS as a service connected disease, allowing veterans with ALS to receive greater access to care and higher level of funding for reasearch into a cause and cure for ALS.

For more information on how you can become an ALS advocate, please visit the public policy section of our website.

North Texas Advocacy delegates meet with Cong. Ralph Hall (R- TX)
from left to right, North Texas Chapter Patient Services Director, Renee Lowery, Lisa McCann, Terry McCann, Cong. Hall and Loree Long.